Data - 01/03/2020
11:00 am - 5:00 pm
Sport Ireland Campus
Franio is one and a half year old. He looks like any other child but his life is a constant fight and suffering.
Sadly SMA1 – Spinal muscular atrophy type I, is taking him away from us all piece by piece… Nobody knows if we will have the chance to celebrate his next birthday together. Without treatment we are just waiting for him to sadly lose his life…
Going to the USA for gene therapy with the Zolgensma drug is the only way! This is the most expensive treatment in the world – we need over
2,1 million dollars! We only have a few months to raise this huge amount of money.
100 eur per team
Raffle on the day too, where you will be able to win some great prizes!
All raised funds will go to Frankies family!
For more details:
+ 353 87 7742195 Marcin
+ 353 85 1232346 Juran